Celine Dion's Pain

The documentary, possibly the last about Celine Dion, called "I Am: Celine Dion" has just been released to the public but has caused a stir on music forums. The way the singer tells about her life and especially her fight against the rare disease Stiffness Syndrome (SPS) has left people stunned.

Celine Dion suffered from the disease for nearly two decades before being properly diagnosed in 2022. The disease causes muscle stiffness and spasms, affecting the singer's ability to walk as well as her vocal cords. For many years, Celine Dion had to take a break from performing and stay home to receive treatment.

A rare muscle disease has kept Celine Dion off stage for years.

The strongest impression when watching the movie is the scene where Celine Dion has to go to the emergency room because of sick The disease flared up. Right at the beginning of the film, viewers saw the singer lying on a stretcher with medical staff, and they hurried towards the ambulance. Without hiding or avoiding, Celine Dion chose to look straight at the truth, at her health condition. Not to explain or attract sympathy from the audience, Celine just recounted her life, her journey of fighting the disease.

Another emergency occurred shortly after Celine Dion was on a recording session. She noticed her foot was spasming. The pain brought Celine to tears. Eventually, the paramedics had to give her two injections of a muscle relaxant. The image reminded her of Édith Piaf in her masterpiece La Môme, Many times while singing on stage, the little French sparrow collapsed in pain because of the illness. And as soon as the crew dragged her backstage, she would use her unique vibrating voice to declare: Give me an injection, I must continue. sing!

Celine Dion appeared at the premiere of I am Celine Dion with her son.

Like Edith, Celine Dion never gave up trying to stand on stage. Early in the film, Celine describes how her condition, known as stiff-body syndrome, affected her vocal abilities.

"Before I had SPS, my singing was the thing I was most proud of. When I breathed, my lungs were fine but there was something blocking the front of my throat that prevented me from reaching higher notes. It's hard to describe clearly to you," she said through tears.

"I don't want the audience to hear my voice like that."

But despite the pain, Celine Dion said: "I'm working hard every day, but I have to admit it's a struggle."

And that: "If I can't run, I'll walk. If I can't walk, I'll crawl" - the owner of the hit My heart will go on added. "And I won't stop. I won't stop."

What Celine and Édith have in common, besides their gifted voices, is probably their intense love for life and their own experiences, regardless of whether they are painful or happy. Édith is only 1.42 m tall, her father does not love her mother, she grew up in her grandmother's brothel, and her first love was so bitter that she lost her only child.

Much later, Edith found true love with a boxer, but their fate was quickly cut short by a plane crash. Lonely in old age, suffering from illness, without family or children, yet when standing on stage Edith still sang. Love in the Rose (Life is pink), and her last hit was the song No, I don't regret it. (No, I don't regret anything).

Celine Dion has a similar attitude. In the film, she asserts: "I look at my life and I love every part of it." Celine also says that while recording music in the studio sounds great, it's even better when she gets to sing a song in front of her fans and be able to "create my own magic."

The feeling of singing in front of an audience is always something Celine is passionate about and it is those emotions that make this woman strive to return to the stage.

Celine Dion says: "I'm working hard every day, but I have to admit it's a struggle."

In December 2022, Celine Dion revealed to her audience about her health condition. In the announcement, she said she had been diagnosed with stiff person syndrome, a rare neurological disorder that causes muscle stiffness and painful muscle spasms. The disease forced the singer to All by myself had to cancel a European tour scheduled to begin in February next year.

"All I know is singing. It's what I've done all my life and it's what I love to do the most," Celine said in a video posted on her Instagram account as she announced her diagnosis.

Celine Dion is working hard to return to the stage.

A good sign, in February, Celine made a remarkable return to the public at the 2024 Grammy Awards. Everyone witnessed the legendary singer step onto the podium without assistance and that discreetly revealed that perhaps her health was Celine is gradually improving.

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